The Patient Resource Center was founded in order to assist patients and their families in accessing current information on the management and prevention of cancer to ensure that they receive high quality treatment and gain access to the newest cancer drugs/treatment strategies through the clinical trials process. The Patient Resource Center is an independent and comprehensive source of cancer treatment information provided exclusively for patients and their families.
We have elected to maintain our focus on helping patients learn about their treatment options and promote access to clinical studies. Optimal delivery of cancer care, however, relies on many other factors including financial and legal support, patient advocacy, and other services. Based on our editors’ review, we recommend the following services to meet these special needs of patients and their families.
Brain Cancer Sites
CancerConnect Brain Cancer Community:
CancerConnect Brain Cancer Community provides current, comprehensive, reliable information on brain cancer and a community where brain cancer patients can exchange information and get support and inspiration.
American Brain Tumor Association
A complete source of information about brain tumors, treatment options, clinical trials and living with a brain tumor.
CancerCare
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
Children’s Brain Tumor Foundation
The mission of the Children’s Brain Tumor Foundation is to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors.
National Brain Tumor Society
Breast Cancer Sites
CancerConnect Breast Cancer Community:
CancerConnect Breast Cancer Community provides current, comprehensive, reliable information on brain cancer and a community where breast cancer patients can exchange information and get support and inspiration.
Breast Cancer Options
BCO provides support and information about effective treatment options, informed patient choice and cancer risk reduction. Their email update, Breast Cancer News, has information on Complementary/Alternative Medicine, Environmental Risk Factors as well as traditional medicine choices. They also have a message board, discount vitamin club and much more.
Breast Cancer Research
Breast Cancer Research aims to serve as a focus for communication in all areas of biology and medicine relevant to breast cancer, with special emphasis on its genetic, biochemical, and cellular bases.
FORCE (Facing Our Risk of Cancer Empowered)
FORCE is a support and information site for women at risk of hereditary breast and ovarian cancer due to family history BRCA genetic status.
HER2 Support
Her2Support.org is an online support group for women whose tumors are HER2-Positive.
Inflammatory Breast Cancer Research Foundation
The IBC Research Foundation is the only cancer research organization which specifically targets inflammatory breast cancer and the research to find its cause. The Foundation has the only literature specifically for IBC: brochures, bookmarks, and an email newsletter, Focus on IBC. The IBC Research Foundation also has three email lists which are for IBC educational and emotional support. Toll free # in U.S. & Canada 1.877.STOP.IBC.
The IBC Network Foundation: Inflammatory Breast Cancer
Living Beyond Breast Cancer
LBBC’s mission is to empower all women affected by breast cancer to live as long as possible with the best quality of life.
National Breast Cancer Coalition
NBCC is a grassroots advocacy organization dedicated to fighting breast cancer.
National Breast Cancer Foundation
The National Breast Cancer Foundation provides information including early signs and symptoms of breast cancer, myths, early detection, breast cancer research and much more.
SHARE Cancer Support: Breast and Ovarian Cancer Support
Susan G. Komen for the Cure
The Pregnant with Cancer Network
Young Survival Coalition
The YSC is dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under.
Childhood Cancer Sites
CancerConnect Childhood Cancer Community:
CancerConnect Childhood cancer Community provides current, comprehensive, reliable information on Childhood cancer and a community where Childhood cancer patients can exchange information and get support and inspiration.
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
CancerCare
Candlelighters Childhood Cancer Foundation
CCCF provides information, support, and advocacy for families of children with cancer, survivor of childhood cancer, and professionals who work with them.
Children’s Brain Tumor Foundation
The mission of the Children’s Brain Tumor Foundation is to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors.
Children’s Treehouse Foundation
LiveSTRONG Young Adult Alliance
The Ulman Cancer Fund for Young Adults
Provides free support programs, education and resources to benefit young adults, their families and friends who are affected by cancer and to promote awareness and prevention of cancer.
Colorectal Cancer Sites
CancerConnect Colon Cancer Community:
CancerConnect Colon Cancer Community provides current, comprehensive, reliable information on colon cancer and a community where colon cancer patients can exchange information and get support and inspiration.
My Colon Cancer Coach
My Colon Cancer Coach is a patient-focused, interactive online tool where newly diagnosed colon cancer patients can learn more about their disease including personalized treatment options to discuss with their physician.
CancerCare
Colorectal Cancer Alliance
The Colon Cancer Alliance (CCA) is the oldest and largest national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer. In order to increase rates of screening and survivorship, the CCA provides patient support, public education, supports research and conducts advocacy work across America.
Colorectal Cancer Coalition (C3)
Colorectal Cancer Network
Provides information and links on colorectal cancer, clinical trials, support group locations, stories of survivors and angels, and ways to join in the fight to end colorectal cancer.
Esophageal Cancer Sites
CancerConnect Esophageal Cancer Community:
CancerConnect Esophageal Cancer Community provides current, comprehensive, reliable information on Esophageal cancer and a community where Esophageal cancer patients can exchange information and get support and inspiration.
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
CancerCare
Esophageal Cancer Awareness Association
The ECAA’s mission is to promote quality of life for those affected by esophageal cancer.
Kidney Cancer Sites
CancerConnect Kidney Cancer Community:
CancerConnect Kidney cancer Community provides current, comprehensive, reliable information on Kidney cancer and a community where Kidney cancer patients can exchange information and get support and inspiration.
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
The Kidney Cancer Association
The Kidney Cancer Association is a membership organization made up of patients, family members, physicians, researchers, and other health professionals.
Leukemia and Lymphoma Sites
CancerConnect Leukemia Cancer Community
CancerConnect Leukemia cancer Community provides current, comprehensive, reliable information on Leukemia cancer and a community where Leukemia cancer patients can exchange information and get support and inspiration.
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
CancerCare
Lymphomation.org
Lymphomation.org provides a helping hand from patient to patient by sharing evidence-based information and voicing the patient perspective in the fight against NHL.
The Leukemia and Lymphoma Society
The Society is a national voluntary health agency dedicated solely to seeking the cause and eventual cure of leukemia, lymphoma, multiple myeloma and Hodgkin’s disease.
Lung Cancer Sites
CancerConnect Lung Cancer Community:
CancerConnect Lung cancer Community provides current, comprehensive, reliable information on Lung cancer and a community where Lung cancer patients can exchange information and get support and inspiration.
GO2 Foundation for Lung Cancer
We work to change the reality of living with lung cancer by ending stigma, increasing public and private research funding, and ensuring access to care.
Mesothelioma Cancer Center
Committed to providing the latest, up-to-date information to our visitors in hopes of creating awareness about the dangers of asbestos.
Lymphedema Sites
Lymphedema Cancer Information Center
Cancer Consultants Lymphedema Cancer Information Center provides current, comprehensive, authoritative information on the prevention, diagnosis, and management of lymphedema.
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
National Lymphedema Network
NLN’s mission is to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN support research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.
Multiple Myeloma Sites
CancerConnect Multiple Myeloma Community
CancerConnect Multiple Myeloma Community provides current, comprehensive, reliable information on Multiple Myeloma cancer and a community where Multiple Myeloma cancer patients can exchange information and get support and inspiration.
The International Myeloma Foundation
The International Myeloma Foundation helps anyone battling multiple myeloma – patients, family, friends, caregivers and the medical and scientific communities. The IMF also has a hotline where people can call to get case specific questions answered.
The Multiple Myeloma Research Foundation
The MMRF focuses on the following four goals: funding research, raising awareness, providing information, and building collaboration. The Multiple Myeloma Information Center provides information about treatment options, new and innovative therapies through clinical trials, supportive care, complementary and alternative medicine, genetic testing, and screening and prevention.
Myeloproliferative Neoplasms
CancerConnect MPN Community
CancerConnect MPNCommunity provides current, comprehensive, reliable information on PV, ET, and MF and a community where Multiple Myeloma cancer patients can exchange information and get support and inspiration.
MPN Research Foundation
Partner. Advocate. Friend. At the MPN Research Foundation, we’re committed to standing with you in the fight against polythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.
PV State of Mind
Resource for individuals facing a diagnosis of polycythemia vera
Ovarian Cancer Sites
CancerConnect Ovarian Cancer Community
CancerConnect Ovarian cancer Community provides current, comprehensive, reliable information on Ovarian cancer and a community where Ovarian cancer patients can exchange information and get support and inspiration.
FORCE (Facing Our Risk of Cancer Empowered)
FORCE is a support and information site for women at risk of hereditary breast and ovarian cancer due to family history or BRCA genetic status.
National Ovarian Cancer Coalition
The National Ovarian Cancer Coalition’s mission is to raise awareness about ovarian cancer and to promote education about the disease. By dispelling myths and misunderstandings, the Coalition is committed to improving the overall survival rate and quality of life for women with ovarian cancer. The Coalition provides help and hope about ovarian cancer with public education and awareness, state divisions, a toll-free Help Line, comprehensive web site, peer support, publications and special projects.
Pancreatic Cancer Sites
CancerConnect Pancreatic Cancer Community
CancerConnect Pancreatic cancer Community provides current, comprehensive, reliable information on Pancreatic cancer and a community where Pancreatic cancer patients can exchange information and get support and inspiration.
Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization is leading the way to increase the survival rate for people diagnosed with this devastating disease through a bold initiative–The Vision of Progress: Double the Pancreatic Cancer Survival Rate by 2020. Together, we can know, fight and end pancreatic cancer by intensifying our efforts to heighten awareness, raise funds for comprehensive private research, and advocate for dedicated federal research to advance early diagnostics, better treatments and increase chances of survival. Visit www.pancan.org for more information.
The Lustgarten Foundation for Pancreatic Cancer Research
The mission of the Lustgarten Foundation is to advance the scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer.
Prostate Cancer Sites
CancerConnect Prostate Cancer Community
CancerConnect Prostate cancer Community provides current, comprehensive, reliable information on Prostate cancer and a community where Prostate cancer patients can exchange information and get support and inspiration.
Male Care
Male Care provides prostate cancer treatment and survival articles written by patient and doctors that are updated weekly.
My Prostate Cancer Treatment
Learn about prostate cancer & determining your prostate cancer risk level.
PAACT
PAACT is a not-for-profit (501) (c) (3) organization, funded by its members, that provides information, support and literature about Prostate Cancer.
Prostate Cancer Research Institute
The Prostate Cancer Research Institute’s mission is to improve the quality of men’s lives by disseminating information that educates and empowers patients, families and the medical community through our Helpline, website, and free newsletter “PCRI Insights.”
The Prostate Net
The Prostate Net is dedicated to providing credible information that enables patients and health professionals to partner in making the appropriate choices, to assure the best chance for a cure and retention of the desired quality of life.
Us Too
US-Too! provides information, counseling and educational meetings to assist men with prostate disease in making decisions about their treatment with confidence and support.
Skin Cancer Sites
Melanoma Research Foundation
Melanoma Research Alliance
The Skin Cancer Foundation
Testicular Cancer Sites
CancerConnect Testicular Cancer Community
CancerConnect Testicular cancer Community provides current, comprehensive, reliable information on Testicular cancer and a community where Testicular cancer patients can exchange information and get support and inspiration.
Cancer Hope Network
Offers free, confidential one-to-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have undergone a similar experience.
Stupid Cancer
Testicular Cancer Resource Center
TCRC is devoted to providing accurate and timely information and support on all aspects of testicular cancer and extragonadal germ cell tumors.
Young Adults Sites
Stupid Cancer
Young Adults With Cancer | LIVESTRONG
The Ulman Cancer Fund for Young Adults
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